Hello, and welcome back to my channel!
Today I'm going to explain to you guys what happened to my port.
This is just the quick story of how I got Sepsis from my port-a-cath.
I did film and I was a vlogging when I got my port placed and when I originally got it accessed.
We had a lot of issues with the nurses not accessing my port correctly.
I learned to access my own port which is great and I did it wonderfully and I followed sterile protocol,
but the problem is by the time I had learned to access my own port,
the nurses had already introduced an infection into my port.
And we had treated it with antibiotics, but the problem with infections
in ports and feeding tubes and other sort of medical devices...
is that they're really difficult to get rid of.
After the first infection, I got in contact with a local Oncologist,
and my infection returned a second time.
On the third time, I was having pus and swelling and my port just
looked really bad, and they just gave me more oral antibiotics.
And I had stopped vlogging, because I had been really sick.
You guys don't know this part of the story.
I don't think I made any videos about it, but basically my port just looked really gnarly.
And we trusted the doctor, because she said that this is normal,
"some people just get a lot of infections."
But less than a week after I completed my course of antibiotics, I had an infection again!
And this one seemed to be much worse.
So I went to the ER and, sure enough, I was hospitalized and diagnosed with bacteremia.
The hospital stay is kind of where the story gets interesting.
It was sort of a hot mess.
First of all, they found out that my port was infected and they had to get it pulled...
and that took them two days.
Anybody who's ever been hospitalized knows that one of the things hospitals
are terrible at is making sure you get your daily medications.
So at the time I was on a medication called Buspar for anxiety.
The hospital was having a really tough time getting me that medication
and, like, getting my medications on schedule.
So for the first two days in the hospital stay I didn't have it, and I was miserable.
I kept having panic attacks and nightmares and I couldn't calm down.
It was pretty terrible, and then I woke up in the middle of the night,
vomiting with horrible pain and they found out that my kidneys were shutting down.
So they had to give me special, like, kidney...
fluid?
So they had to give me that to wake up my kidneys,
which worked, but I was in
What they did to treat my pain was they gave me Morphine.
The morphine worked for the pain, but then they were concerned.
Because every time I put anything in my mouth I would vomit and I couldn't keep anything down.
And obviously they want you keep things down.
So they had me on all these high dose antibiotics, and I was vomiting uncontrollably
and my kidneys were shutting down, and I was in horrible pain-I was curled up in a ball.
I couldn't talk in pain.
And then they decided to try antinausea medication.
So I got IV Zofran and I vomited.
I got IV Phenergen and I vomited again.
So they gave me IV Ativan, because that's what my gastroenterologist,
who had treated me in the past hospitalization told them to do.
The IV Ativan worked, but it basically sedated me,
and I don't remember most of the days that I was on it.
Apparently, my in-laws visited me and I don't really remember, like, any of it
and also apparently, I vomited in front of them.
That happens.
They had me sedated with IV Ativan so I don't remember most of this.
And then they took me off the Ativan, because I developed pneumonia.
And this all happened over the course of, like, two weeks, but it felt like years.
They had to put me on this antibiotic for Pneumonia.
The antibiotic for Pneumonia made me insanely sick.
So at this point, I think I had gone a week without any nutrition,
and the doctors told me they weren't gonna send me home until I started eating again.
But I was really concerned, because it was Christmas time I wanted to go
home for Christmas.
It was my goal to get home for Christmas, and I was, like,
"just placed an NJ feeding tube, and send men home."
I honestly just wanted to get home
and I didn't care, and I know that NJ's can be placed and removed really quickly.
They contacted my gastroenterologist and talked to him about placing a feeding tube.
He said that was fine.
In the meantime, I'm still, like, vomiting I'm not hungry.
I'm not able to eat.
I'm recovering from Pneumonia, and then I started getting these really bad dry heaving spells.
Nothing was touching it.
They couldn't give me the Ativan anymore because it sedated me.
They gave me Haldol which I had an allergic reaction to.
And this entire time I'm going through peripheral IVs like crazy.
They found out pretty quickly why I had a port,
because pretty much within 10 hours of every IV being placed
it infiltrated or blew or whatever.
So then they placed something called a Midline.
The Midline goes deeper than a peripheral IV, and it infiltrated in, like, 10 hours.
Then they placed a second Midline, and that infiltrated in 10 hours.
Then they took me off my fluids, because they were hoping that they could just go without venous access.
All of my electrolytes dropped because I wasn't eating.
They had to place an emergency PICC line, which goes here in the arm.
They placed this PICC line and, of course, my body did not tolerate the PICC line well.
It's really uncomfortable and really painful.
So I'm still not eating.
It's two weeks, and it's Christmas.
I spent Christmas in the hospital last year.
At that point, I was just committed to getting out of the hospital by New Year's.
The first time they tried to place a feeding tube, it's the middle of the night.
And they're trying to place an NJ tube, and the charge nurse just
puts the tube down.
Then they take one still X-ray and see if the tube's in place.
Tube wasn't in place. So they took another x-ray after they adjusted it.
Tube still wasn't in place. So they wanted me to sit there all night with
the guide wire, which makes the tube really stiff, in my nose.
I told them "I'm not doing this. I'm not spending all night with the tube in my nose.
Just reinsert it in the morning."
So then the next day they take me down to Interventional Radiology.
Interventional Radiology has the ability to look at your stomach while they're placing the tube.
So I'm sitting there, like, with the lady shoving the tube in and out of my nose,
while trying to get it in my small intestine.
She finally does, after what feels like forever.
I think it must have been at least 10 minutes.
Then they start running my "feeds."
My feeds were just Gatorade, because that's what my doctor recommended I started off with.
I had this bag of Gatorade and it wasn't it wasn't minimizing, even though it had
been running for 4 hours.
So we asked the nurse about it, and she's like, "oh oh it's running
You just have your feeds being, like, really slow, and that's why."
Then she goes to flush my meds through my tube, and my meds won't flush.
So she blamed my tube.
Because they had placed at 10 French tube. I think it was a 10 French,
which is smaller than the usual sized tubes that they normally place.
Just because I'm a petite person and because of my EDS the feeding tubes are
more likely to tear up my throat.
So she thinks, "oh your feeding tube is just so thin. That's why I can't push meds"
and then just left it at that.
She just wasn't gonna give me my medications.
My husband and my mom and I were all sitting there thinking,
"umm... I'm pretty sure you're supposed to be able to flush this feeding tube with meds,
regardless of the size."
So we got another feeding tube that was the same exact one that I had in my body,
just out of my body.
And sure enough, it flushed like a dream.
We figured my tube was kinked...
Yeah, my feeding tube had kinked.
And I'd had it for less than a day.
The interesting thing was this entire thing happened, and around the
time that we were trying to figure out why my tube wasn't flushing,
I started to get hungry.
So I ate the next day and I kept it down, and it was awesome, because
they were able to send me home the day after that with just my PICC line.
No NJ feeding tube.
My doctors and I think it's really ironic that my stomach
decided to wake up after the feeding tube had been placed.
Then I was sent home for 6 weeks with IV antibiotics that I was allergic to.
And it was a rough 6 weeks, but after 6 weeks I finally got my PICC line pulled.
And the miracle of all miracles is that we found a medication,
during that time that I was on the PICC line,
and I went from not being able to drink any water to being able to drink a liter of water a day.
Which is still less than I should be drinking with my POTS, but it's enough that I don't need another port.
But the punchline of the story is...
I got hospitalized on my honeymoon.
If you want to hear that story, I'd recommend you stay tuned to my channel.
I'm gonna wait till my husband's back from college, and we're gonna make a Vlog
about how we got married, and then I got hospitalized like literally one day into my honeymoon.
It was an interesting way to walk into marriage, to say the least.
That is the story of how I got my port pulled.
I'm sorry if it was insanely boring.
I feel like it kinda was, but I really wanted to make this video to just explain what's going on.
So if you would like to hear more about how this all happened on my honeymoon,
then just subscribe to my channel.
Thank you for watching, and I will see you guys next time!
Look at this -
Look at this, guys. That's- that's what I-
that's what happened, while I was making my video.
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