I'm not going to get back my body that is fully functioning and does all the
things that bodies do and then we did and then he was waiting for us so
good
morning everybody it's Monday something like that it's
Monday because we are on our way to pain clinic and we are stopped off at my
dad's work which is well out the window this is the same place that we stopped
off I don't remember when but I was editing vlogs a long time ago
I think like this time last year or something I don't really remember but
anyways um I've just I didn't vlog yesterday because I didn't do anything
well I literally did nothing I laid on the couch and watch TV the entire day
and then today has just been one of those days too I'm just like tired that
and it's not even that like before I was tired of physically and emotionally from
just not knowing what was happening but now I'm physically tired already because
I know what's coming if that makes sense like this contraption will be in my life
for the next at least two to three months and my jaw is like I don't know
can you see it's like getting sores underneath here because it's constantly
pressing on it and and then I'm tired mentally and
everything because the MRIs are coming up and MRIs make me stressed especially
after the last one where I couldn't breathe when I was in it and then it
just went south and and just nah cuz I don't really know
what I want to come out of everything like obviously I want to have my body
back to a functioning like functioning situation or whatever I don't even know
what that description would be but I'm not going to get back my body that is
fully functioning and does all the things that bodies do so I have to like
come to accept that but then just this is how my mind thinks it like comes up
with like a half but and then it's like abort mission let's know it so we're
going to pain clinic today that's in San Francisco so we'll be there I don't know
it's like 11 ish right now and we are in my desk Oh or something like that I
don't know it's like halfway between where we live in San Francisco
it's either Modesto or Merced pretty sure it's Modesto though and then we
will head onward the appointment is at 2:45 which is about the same time that
the other appointment was when we did this last time and then oh probably
we'll take you with us probably flog though and then I don't
think we're gonna like have any changes after this appointment because we don't
want I think I said this other day that we don't want too many like moving is
the statement and moving cogs something like that and so we're it's more of an
update appointment than to actually do something and then tomorrow's it could
be either way we could either we could do something or we could just update
there too that we continue I I don't know I hope
we either continue pursuing what we were before which is the IVIG because then
maybe I would feel better sometimes I don't know because I don't have a
specific diagnosis that that would address but I do have some sort of
something happening and we will probably talk about I hope we don't try it again
but Plaquenil because apparently the last time when we
tried that blossom when we tried that as when we went where and I ended up in the
ER in the middle of the night with the possible stroke which turned out not to
me and turned out just to be probably my neck acting up and for this and about
the school situation so I we've been talking about my school situation uh
with the fam recently some family members think I should go back to school
like in person school but just so that I have like human interaction everything
but I don't know if my body would handle that very well because we've already
tried it twice both times it was an epic fail and then like yes I'm doing better
in some ways that like it would make it easier to go but then it I'm also doing
like worse in other ways like fact that when I sit up I feel like my spine is
made out of Tic Tacs so the winds loss is whatever so I'll see you at the
appointment or on the way the appointment or something or at least
when my dad gets back from his working I'm just gonna watch YouTube and then
maybe a color or something cuz I'm pretty sure I brought that with us
and I want to drive around aimlessly because my go early
stuffy waiting brutal it's actually not stuffy the syntactic growling open
because for some reason is connected to the upstairs part but fast mode bridge
and then driving around aimlessly
Wow that's human guess that's a cruise ship we are just driving around
aimlessly because the pavements not for another hour and a half fish almost oh I
thought it was at 2:45 well I've actually never seen a crucian we have
our import wait look I never thought that there's like yeah but I call them
dinghies cuz they're small but right they're not technically a dinghy but I
thought they were like underneath kind of but I guess an odd whoa
I've never seen a cleaner ship like this so that's awesome
and that Exploratorium that we always pass by on Embarcadero is probably
apparently not the one that we went to before it's the Grand Princess it's what
it's called see it said on that line the cruise terminal of San Francisco I
thought it was that that piers like a mile back the other way but anyways
we're just driving around and look there's one of those cargo ships or
whatever they're called we have one of those containers in our back yard but
look how many are there are over there they're like 10 feet wide and 40 feet
long why is it not focusing
well anyways that's what we're going to go get bread now from boudin I like to
go in there just to smell it in there it smells nice oh no my battery's running
out hope I packed another one no need to fear
we had it and well we had both spare batteries in my backpack
but literally but there what but one of them was charged and unlike weally
because we probably take wheely back to the wheely place because wheely is out
of battery again but it's not like I just let wheelie die
wheelie was charged but then we forgot to unplug the charger which drains the
battery too so that happened so hopefully we get
that done soon because just be going to Disneyland next month you know all the
priorities we ran all that bread yet because this bus is in both lanes so I
guess we could throw like that guy but we're in Broadway and do that so few up
right we got it the best spot you could possibly have
because that's the doors to get in are we going in now yeah okay well I'll try
not to be awkward but that's kind of what I do
ooh be awkward in restaurants and public places we came up here but I don't know
you can see here that's just making everybody real dizzy but we are in the
top floor of the bakery
there is our car down there we've never come up here as many times as we've been
here I don't know why we've never come up here but
we're here now
it's all the bread thing food we still have like 45 minutes before we need to
go over there therefore I need to be over there
hurts my eyes all I know
I don't know I just made my eyes hurt there's a ferry leaving
ja it's a gigantic book
and some floating bread the mother's dough and I'm not really sure what these
things are for but here we are and apparently
you can't see it in this one but on the other side but they're people flower
silo and the flower going to the bakery that's what I was looking at that's what
this says basically and more thing
so wait house dude oh you never ride I thought it was going off so I but look
that's the flower silo this is what we couldn't see on the
other side and aha and then over the edges them baking
things let's look through on the other side
that's where they make the bread or whatever they do in here
and then if I go to the other side I'll be able to see better but there's people
down there or a person going back to the other side over there that's where we
started the mother dough was I didn't notice that earlier
and gets the mother down
yeah I thought going in there but I answer why that's like a she longest
mixer
that's awesome look how big it is
what's that beeping sound
gonna go over that and uh down there and to that rounder thing which they have
that thing at Disneyland
yeah
oh he's in them but the mother down school that's what it looks like
he's in there
okay so we were like mom fat yeah not like yellow is where we're standing
before and now here's them making bread we got an alligator finally I'll show
you in the car
okay
oh so that guy's make you Lowe's
things out that big ole everything that's like a freaking tree
and then it like flops down and then get to roll down see it
so much much and it flops down
and then watch it
go out underneath things like rolled out
seated roles yet yeah
and that guy's making the flowers
just rally what's he gonna make
full of birds I don't know
here's the alligator we didn't invite the gigantic one because who's gonna eat
that much bread other than me but it's a little alligator how cute
whose eyes or nose or whatever those things are high brows
Oh eyebrows and then all these bumps scales and then what underneath you
could see how his legs look like they're actually curled up underneath there how
cute I thought that was pretty cool now we go to the hospital which is like only
a mile or two away but it's gonna take a little bit because we're in a big city
not like when we're back at home or in the parking structure I've never been
here before but there's lost little three of the thing if I can zoom in
there it is this appointment was good I mean we didn't change anything which we
weren't planning on doing coming into it because why when there's so many moving
parts so I just continued on physical therapy take note of when I'm taking
suffer pain because I'm like yeah I'm taking it like probably just as much as
I was before and he was like you should keep note of it so that you know how
much you're actually taking Emily gotcha and then smell like I haven't been
asking you the same thing for how many months I can't hear you we were early
and then we were late that's why I didn't vlog over there because now
you're gonna get me in trouble we were a few minutes late but then I was after I
checked in they took my weight and everything and she was like let's see if
there's room ready there's no lot to go sit out there and then we did and then
he was waiting for us so one time I wasn't yeah and there was a
third thing oh ah he wants me to consider going back to psychologist for
cognitive behavioral therapy not gonna happen tell him and my pediatrician they
always say that I'm like mm nah I'm good so I need to continue considering that
and other than that we'll see him again in four months just to keep just so you
can chat with you just to keep you know up-to-date in case there is something
that you can do eventually which Rini oh there's like no point in and doing some
things and so there's so many other things changing that we wouldn't know if
the problem was that or the other things so that's my take on it at least and so
we go home now for ours him and we're not and now we're not even sure if my
Rheumatology appointment is tomorrow or the next day so
yeah anything else you'd like to add I think that I covered everything no it
was good good normal informative who is very explaining explain it explains
things well yes it's very nice he's very patient he puts up very well with it
when he asks questions and I give him kind of like a really random answer that
doesn't make sense with the question what's up with that you should have been
like what are you talking about so um think that's all there was another
thing but I can't remember so if I remember I'll say if not I won't know oh
wait there's there's the talk look at that dog he was laughing at me because
we were coming out of the building and I was having a conversation with him and
then I see a dog and I yelled dougie and in stopped having our conversation I was
just focusing on the dog and then I was talking and I crashed into a pole
neither of which are funny situations but he was laughing so that's what I
view Wow not funny nacelle all green was that
they talk about when you're impatient that's the Walgreens right there all
right there because they always tell mom or cheran or whoever's there with me
that they should run to Walgreens to pick up my prescription so that we don't
have to wait on the people who like run them over to the hospital
and I wondered where they were going because Sharon was willing to go and she
doesn't like to walk very far you're welcome Karen unless it's to
Starbucks to Starbucks or shopping yeah there is no limit
you're welcome trying sir you wanted us to say that on the Internet there's the
future home of the Warriors wait wait wait
keep going wait there they are oh you weren't even afraid there's the penance
or whatever those things are calls or banners and then that's where the
warrior just gonna be so it pretty much when you look out the windows the
hospital pretty much all windows at the hospital unless they're facing the other
way I mean obviously but still you see the warrior Stadium and then whatever
this thing is I don't think this is connected but it says that so we are
headed home now and I need to drink more neo Kade and probably eat some snacks
because it's already four o'clock and I've only drink in my breakfast because
I forgot about lunch smart thinking Ellen last time when I
was well not last time but one of the times when I was blogging our trip home
we had like 24 miles to go we had no idea where we were that's the time that
we would show up through the mountain and this time it's telling us that we
have 139 miles to go home the GPS
we have a hundred and thirty eight gallons marine miles of gas to go so
we're definitely stopping because we don't want to have to push get a mouse
in your pocket we means you and I think I chipped off another piece of one of my
teeths because it was real gritty when I was eating so
yay me I can't tell which once I think of fine but it tasted kind of tooth like
my phone dropped we're back home now and we're gonna wash my whores why
oh well don't come up behind me then right now because I'm talking to the
vlog and I'm not taking full-on bath today I'm just washing my actually I'm
not doing anything she's just watching my hers because um
there it's dirty and gross and my hair feels nice tea did I ever say that I can
move my eyebrows nail everybody look I
couldn't do that for like two years so that's a major improvement in my life
and I guess I'll talk to you after we have washed the hers because she doesn't
want to be a nudist in my vlog even though I told her not to walk up behind
me and I'm pretty sure she did my inner thoughts because that one is me I'm
trying to get into my Stanford online medical ow
chart so that we can email my doctor to clarify because we can't even remember
after today and Friday who said what and we can't remember if on Friday they said
only arms and legs physical therapy or if we can do things on my back or what
so we need to clarify but we can't get into my online medical charts too or
system to message them because I got locked out and then we didn't never
called them to get it unlocked so that's what she's doing
tonight and I want to go to bed like soon so I'm just gonna say goodnight and
ignore her and her and her um searching miss because we're not gonna
find anything tonight so good night see you tomorrow because tomorrow is
Rheumatology we did check and Willie's not dead so that's also good good night
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